Coping with Labyrinthitis

Coping with chronic Labyrinthitis is extremely physically and mentally draining. It can be very overwhelming when your body is unwell 24/7 and you don’t have the tools to fix it. Being unable to attain a correct diagnosis from health care professionals furthers the feelings of hopelessness and despair. If you have been sick with Labyrinthitis for a long period, you can start to feel like you will be dizzy for the rest of your life. You can think ‘is this actually happening to me?’

In addition to the physical sensations of Labyrinthitis, the psychological part of Labyrinthitis can sometimes be even harder to live with, and is often overlooked by health care professionals. The majority of Labyrinthitis sufferers usually report feeling anxious or having panic attacks alongside their Labyrinthitis symptoms. There have been a number of studies highlighting how damage to the Vestibular system can directly affect the amygdala gland in the brain (i.e. our fight or flight response to danger). What this means for Labyrinthitis sufferers is that you are in a constant state of ‘high alert’. Feeling anxious or having a panic attack can become a daily occurrence. You may even begin to think ‘is the Labyrinthitis all in my head?’ Labybrinthitis is not all in your head and is a very real illness which needs correct treatment.

Not knowing when you will recover from Labyrinthitis can leave you feeling very helpless. Your life as you know it is gone. Nothing is spontaneous anymore, you can miss out on social occasions and can begin to feel very lonely. It can be easy to isolate yourself as you are afraid of fainting or feeling dizzy. However this can lead to you experiencing depression. Both the physical and psychological aspects of Labyrinthitis must be treated to make a recovery and get your life back. Here are some tools to help you cope:

  • Begin Vestibular Rehabilitation Therapy for Labyrinthitis immediately. The nature of this illness means that it will not go away on its own.
  • Do not isolate yourself. If you cannot leave the house there are online forums to reach out to other sufferers.
  • Seek out a Cognitive Behavioural Therapist and set goals to overcome the anxiety and panic attacks
  • If your eyes are too sore to watch T.V  or look at a laptop/ smart phone screen for long periods, listen to audio books or stand up comedy.
  • Do something small every day to help yourself feel better such as lighting a candle, listening to a relaxation C.D.d or giving yourself a foot massage
  • If the symptoms of depression and anxiety are taking over your life, talk to your GP. Taking an antidepressant temporarily to get you through this time in your life might be a good option.

My book ‘Recover from Labyrinthitis and Vestibular Neuritis..Finally!‘ highlights much more in depth ways to cope with the trauma of Labyrinthitis. Take charge of your recovery.

 

3 Responses to Coping with Labyrinthitis

  1. Aaron says:

    Thanks for the great articles. I have been suffering from Vestibular Neuritis, which is basically the same thing minus the hearing the loss, for about 21 months. I have been doing formal VRT for 1 year now. You are right, when you know what the problem is, you feel much better. I still get down and depressed, wondering why I am not 100% still and also wondering if I have improved to the best of my ability already. I am not giving up yet. I am trying to stay positive through all of this. You are right though, thing DO and CAN get better. The only thing that heels is VRT and time. Stay active as possible and do not spend all day in bed!

    btw, I am currently working on my memoirs/book to get out into the world, since there really are no books on how to deal with this kind of problem. It took me about a year to get a really good diagnoses, so my story is a bit longer and more confusing. It is a scary illness, but luckily there is plenty of company out there!

    • marian says:

      Hey Aaron, thats so brilliant that you are writing a book about your experience. There is sooo little information out there (incl what the doctors know?!) Thats why I did this site so I could let people know there is help!! I’m sure so many people would benefit from a book too 🙂
      So glad to hear you are doing VRT. I was frustrated too not knowing if I would ever be fully better and if the VRT was actually working but stick with it and I’m sure you’ll make a full recovery. If you want any personal stories for your book just ask!
      Mind yourself X

  2. Rachael says:

    Thank you for posting this site! It’s good to know that other people know how it feels.
    Did your doctors ever consider surgery for you?

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